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CELIAC DISEASE FOUNDATION

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Public IRS 990 nonprofit record

CELIAC DISEASE FOUNDATION

EIN 95-4310830 · Diseases, Disorders & Medical Disciplines (G46Z)

What they do

THE CELIAC DISEASE FOUNDATION is THE LEADING GLOBAL PATIENT ADVOCACY ORGANIZATION COMMITTED to ACCELERATING DIAGNOSIS, TREATMENTS, and A CURE for CELIAC DISEASE. OUR MISSION is to IMPROVE THE HEALTH and WELL-BEING of THE MILLIONS of INDIVIDUALS AROUND THE WORLD AFFECTED BY THIS GENETIC AUTOIMMUNE DISEASE THROUGH OUR STRATEGIC INVESTMENTS IN RESEARCH, ADVOCACY, and EDUCATION.

Before you give

Should I give to this charity?

Easy charity check
Look at where the money went

Of every $100 spent, about $69.60 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders18 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

60.00%of revenue went to mission work69.6% of expenses · Program services
11.28%of revenue went to fundraising13.1% of expenses
$86.16spent for every $100 of revenueRevenue covered expenses this year.
14.87%of revenue went to management and office costs17.3% of expenses
$1.81in assets for every $1 spent this yearSome assets cannot be spent right away.
48.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

  1. Who did you help? Ask for a recent story or report that shows real results.
  2. What will my money do? Ask exactly what your gift will pay for.
  3. Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $407,066 for MARILYN GRUNZWEIG GELLER (CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$5,315,881
Mission workProgram services$3,189,54660.00% of revenue69.6% of expenses
ManagementOffice and general costs$790,64814.87% of revenue17.3% of expenses
FundraisingAsking for donations$599,79511.28% of revenue13.1% of expenses
Revenue left after expensesReported annual surplus$735,89213.84% of revenueShown in gray on the chart
Total expenses$4,579,98986.16% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails
2025CurrentExpense mix: 69.6% mission · 17.3% management · 13.1% fundraisingTotal expenses: 86.16% of revenue
2024Expense mix: 75.3% mission · 9.9% management · 14.7% fundraisingTotal expenses: 100.97% of revenue
2023Expense mix: 81.7% mission · 6.6% management · 11.7% fundraisingTotal expenses: 70.78% of revenue
2022Expense mix: 75.4% mission · 8.6% management · 16.0% fundraisingTotal expenses: 69.83% of revenue
2021Expense mix: 90.2% mission · 4.3% management · 5.6% fundraisingTotal expenses: 68.50% of revenue
2020Expense mix: 87.6% mission · 5.2% management · 7.2% fundraisingTotal expenses: 73.94% of revenue
2019Expense mix: 89.4% mission · 5.2% management · 5.4% fundraisingTotal expenses: 88.71% of revenue
2018Expense mix: 89.0% mission · 6.3% management · 4.7% fundraisingTotal expenses: 61.56% of revenue

Money in and money out

Revenue$5,315,881
Expenses$4,579,989
Annual surplus $735,892 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$3,189,546 · 69.6% of expenses
Management and office costs$790,648 · 17.3% of expenses
Fundraising$599,795 · 13.1% of expenses
See all reported dollar amounts
Revenue$5,315,881
Expenses$4,579,989
Assets$8,297,238
Income$6,203,837
Contributions$2,568,848
Mission work (program services)$3,189,546
Fundraising$599,795
Grants given$1,918,540
Average grant$95,927
Management and general$790,648
Executive compensation (total)$386,743
Accounting fees$16,000
Investing fees$16,500
People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation
MARILYN GRUNZWEIG GELLERCEO · 40 hrs/week $407,066Base $350,580 · Other $56,486
BRETT SPITALECHIEF OF STAFF · 40 hrs/week $257,271Base $223,440 · Other $33,831
VANESSA WEISBRODCHIEF EDUCATION & COMMUNIT · 40 hrs/week $228,915Base $186,408 · Other $42,507

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (18)

MARILYN GRUNZWEIG GELLERCEO

BRETT SPITALECHIEF OF STAFF

VANESSA WEISBRODCHIEF EDUCATION & COMMUNIT

JOHN WAGNERGOVERNMENT & ADVOCACY COMMITTEE CHAIR

WILLIAM THURSTONBOARD CHAIR

WARREN SAFTTREASURER

LEE JONESBOARD GOVERNANCE CO-CHAIR

KRISTIN YAREMAMEMBER

KAREN WICKERMEMBER

JORDAN RAMERBOARD GOVERNANCE CO-CHAIR

ADRIENNE BENDERVICE CHAIR

JENNIFER SULLIVANMEMBER

JAMIE RESINMEMBER

GREG FRASCAMEMBER

DAN GIBBONSMEMBER

BRADLEY HERREMABOARD SECRETARY

BLAKELY BRANIFFDEVELOPMENT COMMITTEE CHAIR

BETH BLUEMEMBER

About this charity

Recognized since
January 1995
Location
21300 VICTORY BLVD STE 300, WOODLAND HLS, CA 91367-7725
County
Los Angeles
In care of
MARILYN GRUNZWEIG GELLER
Primary officer
MARILYN GRUNZWEIG GELLER, CEO

How to reach them

WebsiteVisit the charity’s website Emailvanessa.weisbrod@celiac.org Phone(818) 716-1513

Filing and classification

Latest tax year
2025
Tax period began
January 1, 2025
Return type
990
Tax preparer
HENSIEK & CARON CPAS
NTEE classification
Diseases, Disorders & Medical Disciplines (G46Z)
IRS tax category
Voluntary Health Organizations
Grant-giving organization
Yes

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About this report: Information comes from public nonprofit records and may show the latest filing available.

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