LCC FOUNDATION INC
EIN 88-1908603 · Fund Raising & Fund Distribution - Voluntary Health Associations (G12)
What they do
In 2024, The LCC Foundation Advanced Its Mission By Supporting Approximately 40 Families Worldwide Affected By Leukoencephalopathy With Brain Calcifications and Cysts (LCC/Labrune Syndrome), Including 15 Newly Diagnosed Families. The Foundation Provided Patient Resources, Educational Packets, and Virtual Support, Distributed Over 200 Informational Materials to Families and Medical Providers, and Launched Awareness Campaigns That Reached An Estimated 50,000 People Online. The Organization Also Collaborated With Researchers, Participated In Three National Rare Disease Conferences, Co-led A Global Patient Registry Initiative, and Engaged With The FDA to Ensure Patient Voices Are Represented In Early Research and Drug Development Efforts.
Should I give to this charity?
Basic public information is available, but it is not enough to judge how well donations are used. Ask the charity for a current spending breakdown and results.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2024The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders4 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
Money made simple
Ask these three easy questions
- Who did you help? Ask for a recent story or report that shows real results.
- What will my money do? Ask exactly what your gift will pay for.
- Is this really the charity? Give only through its official website or confirmed phone number.
Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.
Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
Money in and money out
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
No compensation was reported for these leaders. The complete board and leadership roster is shown below.
Board and leadership roster (4)
ASHLEY DIKEFOUNDER/EXECUTIVE DIRECTOR
BELINDA STAUBSECRETARY
DANNY DIKECO-FOUNDER
JIM GARLANDTREASURER
About this charity
- Recognized since
- January 2022
- Location
- 105 ECKSTEIN LN, LAKE ST LOUIS, MO 63367-4317
- County
- Saint Charles
- In care of
- % ASHLEY MARIE DIKE
- Primary officer
- Ashley Dike, Executive Director
How to reach them
Filing and classification
- Latest tax year
- 2024
- Tax period began
- May 1, 2024
- Return type
- 990EZ
- NTEE classification
- Fund Raising & Fund Distribution - Voluntary Health Associations (G12)
- IRS tax category
- Fund Raising & Fund Distribution