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CHARCOT-MARIE-TOOTH ASSOCIATION

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Public IRS 990 nonprofit record

CHARCOT-MARIE-TOOTH ASSOCIATION

EIN 22-2480896 · Diseases, Disorders & Medical Disciplines (G8XZ)

What they do

CMTA AWARDS RESEARCH FELLOWSHIPS and GRANTS for RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS of ALL RESEARCHERS RECEIVING ITS FUNDING to PROMOTE KNOWLEDGE EXCHANGE and SYNERGY. IT USES THE SERVICES of A MEDICAL RESEARCH CONSULTANT to OVERSEE THE SELECTION of THE RECEIPIENTS of THE RESEARCH FUNDING and TP WRITE THE GRANTS and CONTRACTS WITH THESE RESEARCHERS.

Before you give

Should I give to this charity?

Easy charity check
Look at where the money went

Of every $100 spent, about $90.70 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders21 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

97.22%of revenue went to mission work90.7% of expenses · Program services
4.98%of revenue went to fundraising4.6% of expenses
$107.16spent for every $100 of revenueSpending was higher than revenue this year.
4.96%of revenue went to management and office costs4.6% of expenses
$1.10in assets for every $1 spent this yearSome assets cannot be spent right away.
83.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

  1. Who did you help? Ask for a recent story or report that shows real results.
  2. What will my money do? Ask exactly what your gift will pay for.
  3. Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $491,794 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $310,996 for SUZANNE BRUHN (CHIEF EXECUTIVE OFFICER). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$6,864,031
Mission workProgram services$6,673,54397.22% of revenue90.7% of expenses
ManagementOffice and general costs$340,4334.96% of revenue4.6% of expenses
FundraisingAsking for donations$341,8494.98% of revenue4.6% of expenses
Total expenses$7,355,825107.16% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails
2025CurrentExpense mix: 90.7% mission · 4.6% management · 4.6% fundraisingTotal expenses: 107.16% of revenue
2024Expense mix: 88.8% mission · 5.5% management · 5.6% fundraisingTotal expenses: 100.22% of revenue
2023Expense mix: 89.5% mission · 5.9% management · 4.6% fundraisingTotal expenses: 109.21% of revenue
2022Expense mix: 91.6% mission · 4.1% management · 4.3% fundraisingTotal expenses: 62.94% of revenue
2021Expense mix: 86.4% mission · 9.9% management · 3.8% fundraisingTotal expenses: 93.62% of revenue
2020Expense mix: 91.0% mission · 5.0% management · 4.0% fundraisingTotal expenses: 74.61% of revenue
2019Expense mix: 89.0% mission · 5.4% management · 5.6% fundraisingTotal expenses: 85.54% of revenue
2018Expense mix: 85.9% mission · 7.2% management · 6.9% fundraisingTotal expenses: 63.20% of revenue

Money in and money out

Revenue$6,864,031
Expenses$7,355,825
Annual shortfall $491,794 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$6,673,543 · 90.7% of expenses
Management and office costs$340,433 · 4.6% of expenses
Fundraising$341,849 · 4.6% of expenses
See all reported dollar amounts
Revenue$6,864,031
Expenses$7,355,825
Assets$8,112,362
Income$7,058,095
Contributions$5,717,540
Mission work (program services)$6,673,543
Fundraising$341,849
Grants given$20,622,126
Average grant$159,861
Management and general$340,433
Executive compensation (total)$361,662
Stocks and bonds$6,921,397
Accounting fees$126,050
People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation
SUZANNE BRUHNCHIEF EXECUTIVE OFFICER · 40 hrs/week $310,996Base $300,000 · Other $10,996
JEANA SWEENEYCHIEF ENGAGEMENT AND GIFT OFFICER · 40 hrs/week $150,179Base $144,515 · Other $5,664
KATHERINE FORSEYCHIEF RESEARCH OFFICER · 40 hrs/week $142,012Base $135,441 · Other $6,571
LAUREL RICHARDSONDIRECTOR OF COMMUNITY OUTREACH · 40 hrs/week $111,901Base $108,061 · Other $3,840

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (21)

SUZANNE BRUHNCHIEF EXECUTIVE OFFICER

JEANA SWEENEYCHIEF ENGAGEMENT AND GIFT OFFICER

KATHERINE FORSEYCHIEF RESEARCH OFFICER

LAUREL RICHARDSONDIRECTOR OF COMMUNITY OUTREACH

GILLES BOUCHARDBOARD CHAIR

WENDY ARNONEBOARD MEMBER

KEVIN SAMITREASURER

KEVIN MARKSBOARD MEMBER

JON PASTORBOARD MEMBER

JOHN SVARENBOARD MEMBER

HERBERT BERONSECRETARY

BERNARD COULIEBOARD MEMBER

GARY J GASPERBOARD MEMBER

DR STEVEN SCHERERBOARD MEMBER

DR MICHAEL SHYBOARD MEMBER

DAVID STARKBOARD MEMBER

DAVID COLDIRONBOARD MEMBER

DAVID APPLEBOARD MEMBER

DAN CHAMBYBOARD MEMBER

CRAIG ZELTSARBOARD MEMBER

CATHERINE ILLINGWORTHBOARD MEMBER

About this charity

Recognized since
January 1986
Location
PO BOX 105, GLENOLDEN, PA 19036-0105
County
Delaware
In care of
SUZANNE BRUHN
Primary officer
SUZANNE BRUHN, CHIEF EXECUTIVE OFFICER

How to reach them

WebsiteVisit the charity’s website Emailinfo@cmtausa.org Phone(800) 606-2682 Officer phone(610) 427-2971

Filing and classification

Latest tax year
2025
Tax period began
January 1, 2025
Return type
990
Tax preparer
BARBACANE THORNTON AND COMPANY
NTEE classification
Diseases, Disorders & Medical Disciplines (G8XZ)
IRS tax category
Voluntary Health Organizations
Grant-giving organization
Yes

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About this report: Information comes from public nonprofit records and may show the latest filing available.

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